WELCOME TO SV-ONE

With Jaxsten and Scott joining, the group now has six patient leaders contributing their voices and experiences to make this year’s event meaningful and impactful. Join us at the Single Ventricle Patient Day breakouts this year at the SV-ONE Fall 2025 Learning Session!

Beginning with 35 care center teams at the first Learning Session in 2009, the journey map showcases how NPC-QIC has grown into a network of 69 pediatric cardiology centers spanning three countries. It underscores key milestones such as the creation of the largest known registry of infants with HLHS, now with over 6,000 enrolled, and the publication of more than 84 shared learnings.