SV-ONE envisions a future where all affected by single ventricle heart disease can thrive and live long, fulfilling lives.

WELCOME TO SV-ONE

 

SPOTLIGHT

 

With Jaxsten and Scott joining, the group now has six patient leaders contributing their voices and experiences to make this year’s event meaningful and impactful. Join us at the Single Ventricle Patient Day breakouts this year at the SV-ONE Fall 2025 Learning Session!

 

GET INVOLVED

ABOUT OUR NETWORK

PATIENTS & FAMILIES

PROSPECTIVE CENTERS & HEALTHCARE PROFESSIONALS


NEWS & HIGHLIGHTS

UPCOMING EVENTS


The Heart of the Matter


Clinicians and parents of SVHD babies share their perspective on the “Heart of the Matter.”